TARS STARS is a non-profit organization that provides a guiding light to those diagnosed with TAR Syndrome and their loved ones. We aid with the lives of families and individuals who navigate and overcome the unique challenges of TARS by raising awareness, providing support, and furthering efforts towards critical research.
What is TAR Syndrome?
TARS (Thrombocytopenia Absent Radius) Syndrome is characterized by the absence of a bone called the radius in each forearm and a deficiency of blood cells involved in the blood-clotting process. It is a rare genetic disorder that occurs in less than 1 in 100,000 live births. The first year is often the hardest due to internal bleeding which contributes to a mortality rate of about 30-40%. In some cases, serious hemorrhaging episodes may lead to an intellectual disability. After the first two years most individuals go on to have a normal life expectancy.
Impact
All donations go towards awareness, support, operational sustainment, and research efforts. You can visit the link below to make a direct donation via PayPal.
