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About This Organization
Shriners Children's is a nationally recognized pediatric specialty hospital system known for its expertise in orthopedic care, limb differences, and rare congenital conditions. For individuals with TAR Syndrome, Shriners offers comprehensive orthopedic evaluations, upper-extremity and limb reconstruction services, physical and occupational therapy, and custom orthotic and prosthetic solutions. Their multidisciplinary teams work closely with families to develop personalized treatment plans that maximize mobility, independence, and quality of life throughout childhood and adolescence.
TAR Syndrome (Thrombocytopenia-Absent Radius Syndrome) is a rare genetic condition characterized by:
- Missing or underdeveloped radius bones in the forearms
- Upper limb and hand differences
- Possible lower limb involvement
- Growth and skeletal abnormalities
- Low platelet counts, especially during infancy
For children with TAR Syndrome, Shriners may provide:
- Comprehensive orthopedic evaluations
- Hand and upper-extremity surgery
- Limb reconstruction procedures
- Limb lengthening when appropriate
- Custom braces and adaptive devices
- Physical therapy
- Occupational therapy
- Prosthetic services when needed
- Long-term monitoring throughout growth and development
Limb Difference Expertise
- One of Shriners Children's greatest strengths is its specialized treatment of limb deficiencies and limb differences. Their multidisciplinary teams create individualized treatment plans based on each child's anatomy, functional goals, age, and family preferences. Treatment may include therapy, bracing, orthotics, prosthetics, reconstructive surgery, or limb-lengthening techniques.